Blog Layout

Ok, last post of preachy, sermon-like content, I realize how this all comes across. I’ve been told t
By Steve Carbonara January 6, 2025
Ok, last post of preachy, sermon-like content, I realize how this all comes across. I’ve been told that my presentation is Angry, Utopian, Redundant and Unclear. So let’s address those comments, as I believe I am speaking for the average patient across this nation. For some background, I’ve been working in healthcare IT since 1999. I have worked in 46 states, across all of the major cities and nearly 1,000 smaller cities and towns. For nearly 7 years I drove 1,500 miles per week at minimum and then for another 7 years I flew 3 weeks a month across the nation — point being that I’ve had 5,000 breakfasts and lunches at diners, talking with ‘the average American’ and hearing the stories of this nation. As you may guess, I’m not shy — and nothing is better than talking with the five 80 year olds sitting at the diner every morning at 6 a.m. in some small town. You hear stories going back decades, of what we were and what has changed.
Ultra-processed foods are killing us
By Steve Carbonara January 3, 2025
So near death experiences aren’t the only failure of healthcare, like I said earlier, there are many stakeholders to blame — or hold to account. Where did it start for you as a patient, or as an employee (insider) working in healthcare, or as a caregiver trying to keep your parents healthy and alive?
Mask mandates forced on patient's that cannot breathe - denied health care
By Steve Carbonara January 2, 2025
Quick recap: I almost died, and United is poorly run and focused only on earnings and not patients. Done — let’s move forward. So how did I get in that hospital bed? Who was to blame? Well, let’s start with this one fun fact — even though there are many people to blame for many things in your life, the first person who needs to be blamed in every scenario is you. Personal accountability (an obligation or willingness to accept responsibility or to account for one's actions) is the focus of Patients First. We all need to take responsibility (able to answer for one's conduct and obligations) for ourselves before we can demand it from the other stakeholders in healthcare.
By Steve Carbonara December 27, 2024
Ok, the last post was a bit evangelical, I’m sorry, but I didn’t know where else to start. Should I have just jumped into telling you how bad my healthcare experience was, or should we be evaluating this discussion from a more holistic perspective than just blaming all of the bad actors? I guess we’ll never know, but thanks for coming back!
By Steve Carbonara December 23, 2024
Why a gorilla you may ask, well, let’s just say I’ve been called that a few times in my life. While I can be polished and executive in my delivery, I am also very blunt and just as aggressive as I am kind in my tone. As I write my personal story, and as I speak as a patient, I believe that full transparency is key, and that means full emotional transparency, as healthcare is not just ‘data and facts,’ it is also our mind, our emotions and our spirit — healthcare is as much love as it is any medical device, doctor or drug.
Patients First Foundation
By Steve Carbonara December 19, 2024
Introducing the Patients First Foundation and "Patient Zero," Steve Carbonara shares his personal healthcare journey to spotlight systemic issues and inspire change. This blog calls for patient stories and professional insights to build a collaborative movement for patient-centered care, accountability, and solutions that prioritize health over profits.

Patient Zero Part 3 -
Gorilla Insights: Accountability in Healthcare

So where were we? Oh yeah, I got discharged on Saturday, August 3rd, at 2 p.m., and by Monday, August 5th, at 1 p.m. I received a denial of obligation from United. How did it get there that fast? Did they hire someone to drive it to me to make sure I knew they were going to screw me? Having a letter telling me that there was a ‘restrictive clause’ on page 50 of a 70-page contract that I had no right to review and negotiate was hilarious! It was better knowing that they recorded my two calls with their support team that clearly told me that my coverage allowed immediate use — remember, they told me the only ‘restriction’ was that the payment needed to be processed! I cannot wait to get those recordings during discovery — not sure if we will get there, but I know I’m not caving in just because someone threatens me with ‘going to collections!’

That’s the funny part, too — you almost die from the care they withhold for several days while the banks sort out the payment, and then, you have to deal with being threatened with collections or bankruptcy within one to two days of being ‘saved’ and discharged. As a patient, as a human, you should be celebrating life and winning the battle against a near-death experience — but it is Corporate Policy to have your life ruined by a $300B conglomerate that couldn’t care less about you as a human. All they care about is quarterly stock prices and bonuses. 


UnitedHealth Group makes an estimated $1.8 billion in profit each month, money that primarily fills the pockets of top executives and shareholders, not patients like you and me who are struggling to survive. They sure as hell need that money more than I need my life or the time to recover and heal emotionally, and after my kids started preparing for my death. My kids spent five agonizing days talking about ‘what if,’ and then when I got home my teenagers asked me ‘how can we pay a $160,000 bill?’
How is this humane? How did this become normalized?


A family member of mine had the same experience, she went into the hospital, and almost died. BCBS removed her from her husband’s policy due to a ‘paperwork issue,’ then billed her $300k+ the week she got home. It took her 3 years to get BCBS to admit that they proactively dropped her to avoid the claims, but she was chased by all of the providers for three years and threatened with collections, credit destruction, and bankruptcy. How does she get all of that back? The aggravation, the hundreds of hours of talking with her husband about their options, the relentless attack of voicemails and letters and emails from ‘ambulance-chasing’ lawyers and collections people with no soul?


Patients First isn’t here only to discuss treatment options and the science behind them (though we will) — we need to talk about the process, about the patient touchpoints, about the lack of empathy, and about the loss of our humanity during a time when all parties should be focused on providing nothing but humane interactions to help patients fight their battles. Unfortunately, humanity has been removed from healthcare, and it is time we bring it back.

The worst part of the story isn’t even United — it is how I got into that hospital to start. We’ll tackle that in the next post. As always, thanks for your time and for choosing to spend a few minutes with me here today. 

Until next time … Steve

Share by: