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Ok, last post of preachy, sermon-like content, I realize how this all comes across. I’ve been told t
By Steve Carbonara January 6, 2025
Ok, last post of preachy, sermon-like content, I realize how this all comes across. I’ve been told that my presentation is Angry, Utopian, Redundant and Unclear. So let’s address those comments, as I believe I am speaking for the average patient across this nation. For some background, I’ve been working in healthcare IT since 1999. I have worked in 46 states, across all of the major cities and nearly 1,000 smaller cities and towns. For nearly 7 years I drove 1,500 miles per week at minimum and then for another 7 years I flew 3 weeks a month across the nation — point being that I’ve had 5,000 breakfasts and lunches at diners, talking with ‘the average American’ and hearing the stories of this nation. As you may guess, I’m not shy — and nothing is better than talking with the five 80 year olds sitting at the diner every morning at 6 a.m. in some small town. You hear stories going back decades, of what we were and what has changed.
Ultra-processed foods are killing us
By Steve Carbonara January 3, 2025
So near death experiences aren’t the only failure of healthcare, like I said earlier, there are many stakeholders to blame — or hold to account. Where did it start for you as a patient, or as an employee (insider) working in healthcare, or as a caregiver trying to keep your parents healthy and alive?
Mask mandates forced on patient's that cannot breathe - denied health care
By Steve Carbonara January 2, 2025
Quick recap: I almost died, and United is poorly run and focused only on earnings and not patients. Done — let’s move forward. So how did I get in that hospital bed? Who was to blame? Well, let’s start with this one fun fact — even though there are many people to blame for many things in your life, the first person who needs to be blamed in every scenario is you. Personal accountability (an obligation or willingness to accept responsibility or to account for one's actions) is the focus of Patients First. We all need to take responsibility (able to answer for one's conduct and obligations) for ourselves before we can demand it from the other stakeholders in healthcare.
Heallthcare Insurance Costs
By Steve Carbonara December 31, 2024
So where were we? Oh yeah, I got discharged on Saturday, August 3rd, at 2 p.m., and by Monday, August 5th, at 1 p.m. I received a denial of obligation from United. How did it get there that fast? Did they hire someone to drive it to me to make sure I knew they were going to screw me? Having a letter telling me that there was a ‘restrictive clause’ on page 50 of a 70-page contract that I had no right to review and negotiate was hilarious! It was better knowing that they recorded my two calls with their support team that clearly told me that my coverage allowed immediate use — remember, they told me the only ‘restriction’ was that the payment needed to be processed! I cannot wait to get those recordings during discovery — not sure if we will get there, but I know I’m not caving in just because someone threatens me with ‘going to collections!’
By Steve Carbonara December 27, 2024
Ok, the last post was a bit evangelical, I’m sorry, but I didn’t know where else to start. Should I have just jumped into telling you how bad my healthcare experience was, or should we be evaluating this discussion from a more holistic perspective than just blaming all of the bad actors? I guess we’ll never know, but thanks for coming back!
Patients First Foundation
By Steve Carbonara December 19, 2024
Introducing the Patients First Foundation and "Patient Zero," Steve Carbonara shares his personal healthcare journey to spotlight systemic issues and inspire change. This blog calls for patient stories and professional insights to build a collaborative movement for patient-centered care, accountability, and solutions that prioritize health over profits.

Patient Zero Part 1 -
Gorilla Insights: Resilience in Healthcare Struggles

Why a gorilla you may ask, well, let’s just say I’ve been called that a few times in my life.  While I can be polished and executive in my delivery, I am also very blunt and just as aggressive as I am kind in my tone. As I write my personal story, and as I speak as a patient, I believe that full transparency is key, and that means full emotional transparency, as healthcare is not just ‘data and facts,’ it is also our mind, our emotions and our spirit — healthcare is as much love as it is any medical device, doctor or drug.


As you read these posts, know that I understand how they may shock many, or they may be too honest for some — but the only way to fix a system that has been broken for 50+ years is to lay it all on the line and get real about the problems facing each of us as a patient and as a taxpayer in the U.S. moving into 2025.


So, funny thing about me, I ‘almost die’ pretty often. For this reason, I’m growing more concerned about the state of healthcare as I grow older — I’m not sure how many more times I can survive one of God's tests!


It is said that ‘God gives His toughest battles to His strongest soldiers,’ Well, I must be Achilles for you Boomers, or Rambo for the GEN X population, or Iron Man for the Millennials! I think that I was tested so that I could tell this story and be a barometer of the healthcare system that we all depend on.


Through this series of posts, I will be discussing my personal experiences. If you are comfortable sharing your experiences, please connect with me through the website forms, and we can begin building the collective experiences in a manner that drives real systematic change — or build a new system ourselves.


So you’ve read this far hoping to see the near-death stories? Well, I’m not one to disappoint, so let’s dive in! 


The first time I almost died, I was a baby. I got pneumonia and was put into the ICU, where I was read my last rites 3 times — at the end of each day, while my parents were told that I would not make it through the night. Over the years, I have heard the story retold by my parents, grandparents, and other family members who lived through it. 


While I don’t have the memory of that week, I have the knowledge that no man knows another man’s journey. There was no test that could predict I would live, there was no pastor that knew God’s will — there was just me, less than a year old, fighting for my life and making it to the next day.


This matters — this matters more than most people want to recognize or admit. We want to rely on others, on technology, on ‘expert opinions,’ but what we seem to forget is the power we hold within ourselves, our own divine right and energy, and our will to live. This means we all have a responsibility to ourselves — and by holding ourselves accountable, as well as our family and friends, we can reverse the wrongs in healthcare just by taking control. As Hippocrates said, “The natural healing force within each of us is the greatest force in getting well.” 


That is what the Patients First Foundation is all about — holding stakeholders accountable and aligning them to repair or even rebuild our healthcare system. Either path can work, but it is clear, the status quo must end. 


Accountability for all — meaning we as patients have to modify our ways and our expectations of ourselves and each other. We are the change, and we have the power — once again to quote Hippocrates, “Before you heal someone, ask him if he's willing to give up the things that make him sick.” 


Join me as we start this journey of change. Together, we will rebuild the healthcare system to meet our needs and to do so with respect, dignity, and humanity. And along the way, I’ll tell you the other half dozen times I almost died … it only gets better, I promise!


Thanks for your time and consideration today, both are appreciated!



Until next time … Steve

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